Gene therapy for haemophilia

New technologies for the treatment of haemophilia offer a future with better control of bleeding, fewer long term complications, a lower treatment burden and, in the case of gene therapy, the prospect of a life largely unaffected by the risk of spontaneous bleeds. They also bring challenges, with major change in the expectations of people …

Personal Resilience – video series

Everyone who works in healthcare knows that challenging events and behaviours are part and parcel of the everyday experience. We all have days when these can get too much. A few years ago at the HNA conference we asked people to give us examples of how they had bounced back from difficult or stressful situations …

London 2020: A Haemnet Consultation Exercise

The UK has an enviable reputation for high quality haemophilia services and pathways for patients. These services face both opportunities and challenges from: the growing range of haemophilia treatment options; the expectation of greater choice for patients and their engagement in the self-management of their condition; and the continuing goal of clinicians to improve clinical practice while the health …

Writing a Literature Review

This short guide describes what goes into writing a literature review. This guide is designed to be accessible and quick to read, and includes links to online information that you may also find useful.

Statistics for non-statisticians

Looking at scientific data and deciding whether or not it’s useful to your own practice can be a challenge. An understanding of some of the concepts used in medical statistics can help you to decide if what you’re seeing is real or just background noise.

Reading and understanding scientific papers

As a healthcare professional, it is important to engage with scientific literature and interpret their findings in the light of your everyday interactions with patients. In this short piece, you’ll find some simple tips on how to read and understand scientific papers. At first glance, research articles can be quite overwhelming. The depth of information …

Useful physiotherapy tools

Here you can find a list of links and downloads to useful tools relevant to haemophilia and physiotherapy.

Effective writing – some hints and tips

Writing effectively may take a little practice, but there are various proven techniques that can help. The hints and tips presented here will assist you in getting your message across clearly and coherently – whatever you’re writing. Writing effectively may take a little practice, but there are various proven techniques that can help. The hints …