Why mixed methods research?

Quantitative data can demonstrate some of what people think about their condition, their treatment and so on. But a full understanding of the nuances and subtleties of lived experience needs more than form-filling and box-ticking. 

That’s why Haemnet studies generally aim to collect data through mixed methods research. 

This multi-faceted approach combines surveys (which may include validated research tools) with in-depth qualitative interviews – giving us a 360-degree view of living with a bleeding disorder. 

We see this as essential in improving the lives, experience and health outcomes of all those affected.

Quality of life assessment tools are now routinely used in assessment of new treatments for bleeding disorders, which is a welcome development. Many study participants also present high quality of life scores and appear to lead a good life.

But many still feel that things could be better. 

To tackle this apparent paradox requires a mixed methods approach. That way, we are better equipped to identify real unmet need and really start to push on in making vital improvements in health-related outcomes. 

Our mixed methods approach to research has been successfully used in studies including:

• Cinderella, which explored the lived experience of women with inherited and acquired bleeding disorders
• Exigency, which investigated the impact of gene therapy on the lives of people across the haemophilia community
• Perceptions of Pain in Haemophilia, which researched the experience of pain among people with haemophilia across the UK.