Recents
How safe is our prescribing practice?
The Prescribing Competency Framework sets out standards for non-medical prescribing that apply to patient assessment, treatment selection and the procedures…
A very human condition: ethnography and the lived experience of haemophilia
Quantitative versus qualitative. Cold, hard facts, and structured statistical data, versus impressions, opinions, motivations, feelings, beliefs and attitudes. While measuring…
Prophylaxis is not the end of the story for haemophilia
Widespread availability of factor prophylaxis – at least in developed nations – has changed the lives of people with haemophilia.…
Race Around The World #RATW campaign
What started as a local attempt to re-invigorate the Yorkshire bleeding disorders community has ended up as an epic worldwide…
Introducing new therapies – the forgotten heroes
We often hear of the endpoints, outcomes and p values associated with introducing new therapies for haemophilia. Delegates to this…
Phoenix rising – share your stories with us
Last year saw the culmination of two major consultation exercises affecting the bleeding disorder community. In May 2020 there was…
Catch-up time for diagnosis and management of von Willebrand disease
While haemophilia is the most well-known inherited bleeding disorder, the commonest such disorder is in fact von Willebrand disease (vWD).…
We’re on the Case
From its earliest days, The Journal of Haemophilia Practice has recognised the value of publishing case reports. Conversations with nurses…
What do you ASPIRE to achieve?
In 2016, we saw an opportunity to work with haemophilia care professionals to “find their leadership voice”. So we developed…
Educational programme is back on!
As lockdown is lifting, we are starting to look at how we can bring you the fabulous educational programmes that…
Women’s Federation of Hemophilia goes virtual in 2020
OK, so ‘world’ not ‘women’ … but at the WFH virtual summit this year women were woven throughout the agenda…
Rewind, remodel, and celebrate what we’ve achieved
Think back to the last time we cancelled the annual HNA meeting. That was back in the autumn of 2018,…