Recents
Personalising haemophilia management with shared decision making
Haemophilia healthcare is constantly evolving. Partnership with people with haemophilia is increasingly recognised as vital for ensuring high quality…
V is not for von Willebrand disease!
I’m always very happy to go to Africa – and not so long ago I was lucky enough to go…
“I didn’t know I was a carrier”
Haemnet’s Cinderella Study explores the real life experience of women with bleeding disorders in the UK. Our third animation, Struggles…
What do you do about your patients’ pain?
There was a time when no-one really talked about pain and bleeding disorders. Now, no bleeding disorders conference is complete…
It’s not all about boys
Haemophilia is not the most common inherited bleeding disorder, but it is the one that most people have heard of.…
It’s time to talk about pain
We know that pain is common among people with haemophilia. The impacts of living with chronic pain are known too…
Changing the language of haemophilia
The Scientific and Standardization Committee (SSC) of the International Society on Thrombosis and Haemostasis has proposed a change to…
Bruises, bleeds and babies – the Cinderella stories
Most people know the story of Cinderella. Having spent years being overlooked, unrecognised, ignored, she eventually achieves recognition. Her name…
Women shouldn’t need to ask for equitable care
By Hannah Yarnall, Youth Ambassador for The Haemophilia Society UK How can you help improve the lives of women living…
Effective advocacy can help develop physiotherapy services
By Alex Taylor-Rose, Youth Ambassador for The Haemophilia Society UK Those of us who live with haemophilia are used to…
Bleeding disorder services need to think about parents too
By Josh Taylor-Rose, Youth Ambassador for The Haemophilia Society UK What changes would have a positive impact on life for…
What’s in a name? Pain is real if you live with it
Chronic pain is defined as pain that lasts for more than three months – something that many people with a…