Recents
Reflecting on the role of the haemophilia nurse
For International Nurses Day 2023, I’m delighted that The Journal of Haemophilia Practice is publishing the first papers in our Living,…
Mild disorders matter
People whose bleeding disorders are categorised as ‘mild’ (often defined as having between 5% to 40% of usual clotting levels)…
A bleed is a bleed – whatever your diagnosis
The theme of World Hemophilia Day this year is “Access for All: Prevention of bleeds as the global standard of care”.…
Capturing quality of life after gene therapy
The treatment options available to people with haemophilia have expanded rapidly in recent years. With gene therapies for both…
Visualising haemophilia gene therapy
With the recent licensing of haemophilia gene therapy, it’s no surprise that it was a hot topic at the EAHAD…
Let’s hear it for the girls
On International Women’s Day 2023, Haemnet shines a light on women and girls with bleeding disorders Looking back on…
Yes, haemophilia affects women too
For far too long, haemophilia has been associated with men. Women have been relegated to being labelled as ‘carriers’ and…
Using mixed methods to uncover Glanzmann’s Thrombasthenia
Rare Disease Day is celebrated globally on 28 February each year, drawing focus to over 300 million people worldwide who…
Meeting again in person at EAHAD
The Haemnet team has always found the annual EAHAD congress to be one of the most fun and sociable meetings…
A reconstitutional question
Factor replacement therapies have been revolutionary for people with haemophilia. The ability to treat at home – or even on…
What’s in a label?
I have asthma – I am not an asthmatic! I am Kate, a woman, a children’s nurse, a daughter, a…
Looking back on 2022, we’re looking forward to 2023
2022 was a transitional year for Haemnet, and it was both full and fulfilling. We’ve asked important questions, explored…