Recents
Family trees and factor – haemophilia education in Nigeria
Haemnet’s Director of Research, Kate Khair, recently travelled to deliver haemophilia education in Nigeria to support improved rates of diagnosis.…
Eduard and Erik need apostrophes – or Pedants “R” Us
On International Apostrophe Day, Haemnet’s CEO, Mike Holland, muses on the naming of bleeding disorders When it comes to writing,…
Sporting inspiration – exercising with a bleeding disorder
Our Project GYM resources provide hints and tips on exercise for people with bleeding disorders and personal trainers …
On von Willebrand disease, community, and being the voice of the voiceless
Sunny Maini talks about using his experience of von Willebrand disease and a successful corporate background to nurture an empowered…
Reflections on the Infected Blood Inquiry report: the beginning of justice
Three weeks on from the publication of Sir Brian Langstaff’s report on the Infected Blood Inquiry, Sally-Anne Wherry reflects on…
Accessing haemophilia care in Uganda
The theme for World Hemophilia Day 2024 is ‘Equitable Access for All: Recognizing All Bleeding Disorders’. If you have haemophilia…
From haemophilia hero to ecology zero: Luke’s new chapter
Back in the 2011, I received an invitation to participate in a focus group for young people with haemophilia. The…
In addressing equity, we need to acknowledge the rares within the rare
For Rare Disease Day 2024 the theme is “equity.” This is certainly a topic that resonates within the bleeding disorders…
Listen and learn like a legend
Vincent van Gogh cut one off in a rage, but Dr Kate Khair’s grandfather’s knew that Voltaire was on to…
Celebrating haemophilia specialist nurses
Last year, The Journal of Haemophilia Practice created a space within its pages to reflect on the important role that…
Pathway to Cures: Seeking a world without inheritable blood and bleeding disorders
Imagine a world where inheritable bleeding disorders don’t exist. It’s an ambitious vision but one that Pathway to Cures (P2C),…
Shared decision-making and haemophilia gene therapy
Shared decision-making is a catchy piece of language – and it increasingly feels like it’s everywhere when it comes…