Recents
This One’s For the Girls
How many girls and young women do you see with bleeding disorders? And how well do they cope with their…
Haemophilia nurses – a hugely professional yet untapped resource
As World Haemophilia Day falls in this week, it seems appropriate to celebrate the professionals in the front-line of improving…
Trees and next year’s Snippety Bits
Last year, Haemophilia published a paper entitled “Why don’t haemophilia nurses do research?” Based on an HNA survey from a…
Putting the pieces together in practice
Is your practice evidence-based? And what does that mean anyway? Those of you who came to the HNA meeting will recall…
Nurses: Your Service Needs You!
Commissioning of haemophilia care is set to change in the latest NHS shake-up. Although most of the new structures have…
Reflections on the art and risks of conference planning
So when one of the industry delegates asked over dinner if conference organising was my main job, I had to…
How do you see the future of haemophilia nursing?
Last year, we asked HNA members to complete a Survey Monkey questionnaire that aimed to reveal more about members, their…
Of tortoises, hares, and future hopes and fears
Good report in Nature Medicine this week summarizing how the future landscape in haemophilia care is likely to change as…
We all need suspicious minds
What do you think when a patient presents to your clinic with blood in the urine? Do you think bleeding…
How well do your patients take their treatment?
“Treatments don’t work in people who don’t take them.” Seems obvious doesn’t it? According to the World Health Organization, research…
Why mixed methods matter in bleeding disorders research
From clinical trials to observational studies, people with bleeding disorders are often included in research. There’s no denying that this…
Caring for boys with severe haemophilia A: a family journey – part 2
In our second blog about Lauren, Ben and their family, they focus on the role that teamwork and trust have…