We’re on the Case
From its earliest days, The Journal of Haemophilia Practice has recognised the value of publishing case reports. Conversations with nurses and allied health care practitioners working in bleeding disorders care pointed to the lack of available and relevant educational case studies being an issue. Fast-forward eight years, and the Journal’s online pages include case reports …
What do you ASPIRE to achieve?
In 2016, we saw an opportunity to work with haemophilia care professionals to “find their leadership voice”. So we developed ASPIRE, Haemnet’s personal and leadership development programme for multidisciplinary specialists in haemophilia who: aspire to lead and influence change in haemophilia care need to influence a wide range of people see themselves as the leaders …
Farewell from the Haemophilia Nurse Poet!
40 years ago, Trish Bell began her training as a nurse, eventually moving in to the role of ‘haemophilia specialist nurse’…and also becoming known as the Haemophilia Nurse Poet! Those of you who have attended HNA in the past will fondly remember Trish’s recitals which quickly became a staple for the meeting! Unfortunately, we were …
Educational programme is back on!
As lockdown is lifting, we are starting to look at how we can bring you the fabulous educational programmes that we planned back in January. Pay attention – starved of HNA company you WON’T want to miss out on this lot. Introduction to Bleeding Disorders In September we will run the first in a …
Women’s Federation of Hemophilia goes virtual in 2020
OK, so ‘world’ not ‘women’ … but at the WFH virtual summit this year women were woven throughout the agenda alongside the usual prophylaxis, quality of life and gene therapy talks. WFH 2020 had 7000 delegates who negotiated the technical difficulties of the virtual world and were able to listen in, live or to recordings, …
Rewind, remodel, and celebrate what we’ve achieved
Think back to the last time we cancelled the annual HNA meeting. That was back in the autumn of 2018, those heady days before the media knew how to use terms like “underlying health issues” and “PPE”. As a result of the World Federation of Hemophilia congress in Glasgow we held regional meetings in Liverpool, …
A message from the HNA Committee
Hi everyone, We hope you are all safe and well in these strange times. We’re sorry that due to pandemic precautions enforced we had to postpone the HNA conference and that we therefore couldn’t all get together last weekend. We were so saddened that we had to do this as we had so many things …
Fishing for platelets… VWD explained?
Explaining a complex topic like Type 1 von Willebrand Disease (vWD) to patients and families is a real challenge. “Getting across the science of how any bleeding disorder works can be tricky,” said Sarah Garside, Haemophilia Specialist Nurse at the Haemophilia Comprehensive Care Centre in Leeds. “Working with children means that I’m always trying to …
Haemnet and HNA 2020: COVID-19 Response
Haemnet and HNA 2020: COVID-19 Response The Haemnet team has been monitoring the situation and government advice on the Coronavirus (COVID-19) outbreak, particularly in relation to the HNA 2020 conference originally scheduled for 3/4 April. What we know so far… The WHO has now declared COVID-19 a pandemic, and it seems likely that the …